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Don't Think About Monkeys. Extraordinary Stories Written by People with Tourette Syndrome
Get Free Ebook Don't Think About Monkeys. Extraordinary Stories Written by People with Tourette Syndrome
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Review
We have many medical accounts of Tourette syndrome, but far too few stories "from the inside," stories of what it is like, what it means, to live with Tourette syndrome, every day and minute of one's life; how others respond to it, and how, finally hopefully, one may come to terms with it. -- Oliver Sacks
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About the Author
Adam Ward Seligman is a freelance writer. Her regularly lectures on Tourette syndrome and disability issues. His articles have appeared in the Los Angeles Times, Jazziz, Keyboard and other publications. He is the author of the novel Echolalia (Hope Press). (Adam who had severe Tourette syndrome, died in 1999 of unrelated causes). John S. Hilkevich is an educator who is completing graduate studies in Counseling Services. He is a start certified Emergency Medical Technician and Vice President of his of his township's rescue squad. He directs Environmental Experiences, a national-award winning adventure program.
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Product details
Paperback: 200 pages
Publisher: Hope Pr; First Edition edition (June 1, 1992)
Language: English
ISBN-10: 1878267337
ISBN-13: 978-1878267337
Product Dimensions:
5.2 x 0.5 x 8 inches
Shipping Weight: 8 ounces (View shipping rates and policies)
Average Customer Review:
3.9 out of 5 stars
10 customer reviews
Amazon Best Sellers Rank:
#1,942,005 in Books (See Top 100 in Books)
I've found most books about Tourette Syndrome, and the reason I've avoided reading any till now, concentrate on children. My boyfriend has Tourette Syndrome and I wanted to know more about the experiences of adults with Tourette's. This book does that... mostly. There are some fascinating stories and amazing descriptions of compulsive behavior and the feeling of holding in tics but there are some juvenile stories which really didn't grab me and a few stories that seem to lack any editing at all, complete with spelling mistakes.
There are so few books around like this - it is very hard to find personal accounts of Tourette's Syndrome. I found all the stories very interesting and insightful - the only thing I found lacking is I wanted to read more about experiences of the co-morbidities of TS especially ADHD. There is plenty about OCD in this book but not so much about ADHD. But don't let that put you off - it is just such a great and rare read that it left me wanting more. I also got a lot out of James Patterson's "Torn Apart" because there is much insight into how TS is not just about tics. How I'd love the world to know that and understand my TS son's many quirks and sensitivities.
Bought this for an academic library's collection. Advertised as "Used--Like New." This was Incorrect. The book looked fine closed, but when opened it's obvious it was a bindery problem : first 22 pages at a slant (miscut) and not fully glued. Would not have survived library use. Vendor understanding and communicative; issued credit to my credit card. Will have to find another, sturdy copy. Problem was with physical book, NOT vendor or intellectual content of the book.
Great read that opened up my perspective to people with Tourette Syndrome.
Excellent book about what it is like to live with tourette's syndrome. Helped explain a lot of the ins and outs of daily living for my son. Definite must read!
This was a great book! It has very interesting stories written by people who have Tourette's. thank you! . .
I was given this book when I was young and first diagnosed--I can tell you, being a very bright child with a tic disorder in an image-obsessed culture like the one I grew up in is NOT fun, and you cling to anything that lets you know you're not crazy. This book helped with that. It let me know that things I had thought only I did or thought were done or thought by other people--I wasn't as bizarre as I thought I was. That was invaluable for me to know. And the different perspectives and stories, and the ways those stories are told, are wonderful to read, reminding us that no two cases of Tourettes are the same and even among fellow Tourettics, we're all unique--just people, not simply "cases". It doesn't go into any butterfly-snowflake-rainbow flakiness, though, and the stories in fact tend more toward those of frustration and angst--the storytellers often have voices of painful isolation and wondering why one can't fit in as hard as one tries.I have mixed feelings about that. On the one hand, that is the reality of Tourettes; I've lived it and I know countless others do too. The chapter, "Not Cute, Not Endearing" struck a particular chord with me, as it was something I felt often: why were the kids in my middle and high schools who "adopted" the kids with Down Syndrome or rallied around a boy who was paralyzed in our freshman year the same ones who laughed and whispered at me or tried to trigger my tics for fun? There's a definite double-standard; Tourette's isn't seen as a disability or a medical condition, it's seen as a weirdness. But this book--and, I've felt, the other Hope Press books I've read--dwell on the frustration of isolation or else devolve into trite cliches about "I Have Tourettes But Tourettes Doesn't Have Me" (this was the title of an HBO special that I loved until it honest-to-God ended with a child singing "Tomorrow" from Annie over the credits). Where's the happy medium? Where are the stories about people who maybe don't struggle or maybe haven't learned how to live around it to the point that they're now rockstars in life, but are just plain old getting by--and knowing that that's something worth celebrating? I've honestly seen that done better by MTV documentaries than some of the Hope Press stuff.I will add a caveat, however, to this: this book came out in, I believe, 1990, and life for Tourettics was different then. There wasn't the visibility we have now--positive or negative--there wasn't the awareness in the medical fields, and there were fewer treatments, which were usually worse than what we have now. In that sense, this book is kind of a time capsule of one generation's experience with Tourettes--unfortunately, it's not the current one's. With greater visibility, better treatment, better awareness in medicine and the schools, and--HELLO--the Internet, where I can and have found like-minded souls from all over the world in communities dedicated to Tourettes, or simply find friends who can't see me ticcing from behind my computer screen; with all of this, life has improved. And yet, the stories in the collection show experiences that remain true: the brilliant mind trapped in a bizarre body that causes people to write it off before they hear it speak; the frustrated boy who learns to harness his excess energy toward art; the determined boy who learns that "if you treat it as not a big deal, other people will too"; the peculiar mix of recognition and difference of meeting others with Tourettes.I wish this book could be reissued. The packaging isn't attractive or modern-looking, it's hard to get a hold of and not well-known, the text needs proofreading, and there's unfortunately too few stories by females and people of color or of other statuses of "Otherness" with the condition; I had to notice, when reading this when I was younger, that there were a lot of guys writing in it, but the particular difficulty of being female with the disorder wasn't examined--because as bizarre as it is to see a guy with Tourettes symptoms,I can tell you as a female with the disorder that we are even less "allowed" to be strange. That kind of made me feel like an outsider among outsiders. I really feel like it's an important contribution to the literature on Tourettes, but there needs to be a reissue--and a new "sequel" showing life for Millenials with Tourettes.The bottom line is, if you don't have Tourettes, this book will let inside our heads a little--but please don't take it as an invitation to pity or a suggestion of self-pity. If you have Tourettes or think you might, this book will let you know you're not crazy, and as much as everybody needs that, we need it more. Just be aware of it's limitations and try to frame it in the context of the time it was written.Overall, 4/5.
I purchased this book several years ago. Since then, I have had the opportunity to observe several other children-one 19 year old with tourette syndrome. This book is full of a varity of people with different forms of Tourette's. The chldren I have met also have different types of "twitches and tic's". This book shows that the media-or televisions shows that protray Tourette's, are totally overblown. Some people do indeed "twitch" or "vocally" give out annoying sounds. Some are very well controlled in public, but let loose at home. The book is an excellent example of different examples of Tourette's and how to become aware of what you are seeing or hearing. Anyone really interested in the subject - read this book! (:
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